Living with Congenitally Corrected Transposition of the Great Arteries

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The most common cyanotic congenital heart defect that presents in the first month after birth is transposition of the great arteries (TGA) -- dextro-TGA (d-TGA) and levo-TGA (l-TGA) or congenitally corrected TGA (also known as cc-TGA). Because cc-TGA is rarer than d-TGA, it's not often spoken about. In this episode, we'll have two adult survivors with cc-TGA talk about what it's like living with cc-TGA, how it's affected their lives and what advice they have for parents of babies with cc-TGA.

The episode opens with Carol Raimondi. Carol Raimondi was born in 1975 with levo-transposition of the great arteries, pulmonary stenosis, atrial septal defect, ventricular septal defect (or VSD) and dextrocardia. Her first surgery at age 5, repaired her VSD and widened her pulmonary artery. Soon after that, she required a pacemaker. She has had 3 more open-heart surgeries – at ages 12, 21 and 31, and numerous pacemaker surgeries.

David Franco was born on December 19, 1966. His heart defect was not detected until 6 weeks after birth. David’s parents were given very few options and David was sent to the University of Alabama, Birmingham to have his VSD closed by Dr. John Kirklin. He received a pacemaker during the operation.

David had a second OHS at 27 to replace his pulmonary valve and add a pulmonary conduit allowing more oxygenated blood to go through his body. The surgery was successful but David suffered a stroke during the procedure. He also received an implanted cardioverter defibrillator — or an ICD.

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