Sarc Fighter: Living with Sarcoidosis and other rare diseases

Once you receive a diagnosis of Sarcoidosis, you have an answer.  But that raises more questions.  What medications should I take?  Will they work?  Is it the right medication?  What complications cou...

The Foundation for Sarcoidosis Research (FSR) is gaining national traction in the fight against sarcoidosis—championing research funding, patient rights, and access to treatment. In this episode, we d...

In this episode of the FSR Sarc Fighter Podcast, it's time to think.  Borrowing some thoughts from a man who faced a possibly fatal brain condition, I look at how similar his case is to our own -- bea...

If there is one place to meet other sarcoidosis patients and to get your questions answered, from insurance denials to sex after sarc, it's at the 2025 FSR Global Virtual Sarcoidosis Summit.  The Summ...

In this Episode of the FSR Sarc Fighter podcast, Dr. Brandon Moss, Director of the Neuro Sarcoidosis Clinic at the Cleveland Clinic, talks about the unique challenges of neuro sarcoidosis.  Dr. Moss a...

The combination of Sarcoidosis and Covid proved too much for Wade Tomlinson.  His lungs were wracked with damage from sarcoidosis.  So when he got covid it was the punch his body couldn't handle and h...

XTMAB-16, a drug now in clinical trials has been developed by Xentria.  In this episode of the FSR Sarc Fighter podcast, Noopur Singh, Vice President of marketing & Patient Affairs, and Tom Matthe...

In this episode of the FSr Sarc Fighter Podcast, Dr. Laura Runge-Gordon talks about how neurosarcoidosis crept into her life after years of misdiagnosis.  She has seen every kind of complication you c...

Perry Montoya is a travel writer and tour guide.  He's led people through the holy sites around Jerusalem and understands the history of the Bible.  Now he's learning to understand and cope with Sarco...

Attorney Joel Rosen woke up one day and he wasn't feeling well.  He thought maybe it was a cold.  But he just couldn't get to feeling better.  That sent him through a series of tests that eventually l...

Sarc Fighter MaryKay Reidenbach has been fighting sarcoidosis for close to three decades.  It's invaded so many parts of her body, it's hard to figure out where it's the worst.  But she keeps plugging...

This podcast is a recording of the amazing town hall discussion looking at aTyr Pharma's drug that shows great promise as a replacement for prednisone for pulmonary sarcoidosis patients.  In this disc...

Sam Wassel is a young wife and mother.  She is also a long distance runner.  But the hardest thing she's encountered recently is the pain in her abdomen.  At first she thought it was a severe issue wi...

In Episode 80 of the Sarc Fighter podcast, we take it too sarcoidosis in two ways -- by learning how to join an important clinical trial and by living the fullest life we can despite the challenges sa...

In Episode 64 of the Sarc Fighter podcast Mary McGowan, CEO of the Foundation for Sarcoidosis Research and Tricha Shivas, Chief Strategy Officer talk about an exciting new development that will make i...

Erica Courtenay-Mann was feeling tired all the time.  Beyond tired.  Fatigued and unmotivated, but nobody understood.  It was the onset of sarcoidosis.  After several attempts for treatment -- her doc...

Amy Whaley is a caregiver.  Her husband, Bobby suffers from a severe case of sarcoidosis.  They are fighting sarc together.  In this episode of the Sarc Fighter podcast, Amy talks about her life, her ...

Adam Bernardi has a great job working in Hollywood.  He's met some big name celebs, and even worked with them.  He's edited or worked on projects you've likely seen.  But none of that could prevent sa...

Lisa Pflug's hand started shaking one day and she couldn't make it stop.  For months neither she nor her doctors could explain it.  Then they started looking at her spinal cord, and they found the pro...

Living in a rural area can be tough when you are faced with a rare disease like sarcoidosis.  So Imagine living in remote North Dakota and trying to find a diagnosis and medical care.  That is the cas...

Maybe we could call it "sarcoidosis creep."  For people who have chronic sarc, it seems like if it doesn't get better, it slowly gets worse.  When that happens, people's lives change.  Their activitie...

As part of Sarcoidosis Awareness month, I wanted to tell you a personal story that happened just today, the day before World Sarcoidosis Awareness day -- in which a very good doctor had no knowledge o...

Sarc Fighter Susan Bassi was a very active outdoors person who once thought nothing of hiking 10 miles.  Then Sarcoidosis raised its ugly head, and today she is trying to adjust to a life where she ca...

Cardiac Sarc Fighter Mark Landiak has had a tough run of it.  One day he is feeling great, getting some fresh air with his daughter on a hike most people would never undertake.  The next, he isn't sur...

Desiree West-McCarty was young, beautiful and healthy.  So much so that she was on the cover of a magazine with the caption "A picture of Health."  Then she started getting headaches.  "I was on the b...

Mindy Buchanan is the Patient Engagement Manager for the Foundation for Sarcoidosis Research.  In this episode, she talks about the success of the September virtual summit and how you can participate ...

Angela Frelander is the person between you and a cure.  Ok -- I won't put it all on her shoulders, but without her, The Foundation for Sarcoidosis Research and all the people working to make our lives...

Here on World Sarcoidosis Day the Sarc Fighter podcast looks at how we are all fighting the threat from COVID-19.   Sarc patient Jim Kuhn shares the extreme measures he is using to stay safe, while he...

John Carlin launches the Sarc Fighter podcast, by sharing the story of how sarcoidosis has taken over his life -- and how he is fighting back.  From the drugs that worked to those that didn't  - and t...

This is the trailer for the Sarc Fighter podcast ...